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No one wanted to hold Rachel's hand.
A petite 8-year-old with blond hair and big
blue eyes, Rachel Walther had hands that were constantly wet
and cold. Her hands and feet would sweat. She wore gloves at
piano lessons to keep the keys dry. She kept a towel in her
desk at school to wipe off her papers. Her tennis racket slipped
during lessons because of her perspiration. But what made her
cry was that no one wanted to hold her hand. Rachel has hyperhidrosis,
a condition that causes excessive sweating.
Her mother, Sarah Walther,
knew something was not right. "At age2, I noticed that her socks would be
soaking wet and her hands would be sweaty," Sarah recalls.
When Rachel was 3 years old, her mother knew the sweaty hands
and feet were abnormal, but their pediatrician said she would
outgrow it.
"Then I saw a '20/20' special on it and,
boy, did I bawl. I thought, 'That's my girl, that's my daughter,'"
Sarah says. At the time, she did not hear the name, hyperhidrosis,
and it was several years later before Sarah found a diagnosis
for Rachel.
Hyperhidrosis affects 0.6 percent to 1 percent
of the population, or about 6,000-10,000 people in San Antonio.
It is a hereditary condition caused by an overactive sympathetic
nervous system. Symptoms include extreme sweating of the hands,
underarm area, face, scalp, or feet. It is associated with Raynaud's
Syndrome (cold hands that often change colors because of hypersensitivity
to temperature change), facial blushing and Reflex Sympthetic
Dystrophy, pain of the hands and arms.
Hyperhidrosis causes more than the physical
discomfort. With time, it becomes an emotional issue. After
seeing the news special, Sarah and her husband, Larry, knew
their daughter would be in for a tough time as she got older.
Despite not having a diagnosis, they still prayed for a treatment.
The first treatment, Drysol, a topical antiperspirant used
by athletes, did not work.
In the fall of 2000,
Sarah asked her prayer group for help. Amazingly enough,
a member of the group had
just heard a story about hyperhidrosis. Rachel's condition
now had a name and a possible treatment. Sarah took the 800
number and
put it on her bulletin board. The day Rachel came home from
school in tears because no one wanted to hold her hand, Sarah
called. "I had no idea the office was in San Antonio,"
she says.
Innovative Treatment
Dr. David Nielson is
a successful cardio-thoracic surgeon who specializes in endoscopic
lung therapy on adults and children. But what Nielson is
fast
becoming known for is his innovative treatment for patients
with hyperhidrosis. Micro-endoscopic thoracic sympathectomy,
created by Nielson, is the least invasive surgery for people
suffering from hyperhidrosis. This procedure has the quickest
recovery time and has a 99 percent improvement rate for those
suffering from excessive sweating of the hands and almost
equally
as high a success rate for those suffering from underarm sweating,
facial blushing, Raynaud's Syndrome and RSD. Nielson became involved
with the treatment for hyperhidrosis in the late 1980's while
at Temple University Medical School. At that time, treatment
of hyperactive sympathetic nerve dysfunction was very invasive.
It involved making a single large incision or four 1/2-inch
to 1-inch incisions in the chest, spreading the ribs, severing
the nerve and several painful days in the hospital. As technology
allowed, Nielson has continuously improved his endoscopic techniques
of his heart and lung surgeries, which he used to create the
ETS procedure, by making smaller and fewer incisions. During the procedure,
Nielson makes a single incision, one-twelfth on an inch per
side, under each arm. Nielson inserts a 2 mm scope, camera and
micro scissors into the incision. Nielson compares the size
of his instruments to angel hair pasta. Once the sympathetic
nerve is identified, he severs it, which instantly improves
the excessive sweating. The procedure takes 30 minutes. The
patient is able to leave two to four hours after the procedure. Rachel is the youngest
patient and smallest to have the procedure done. His patients
now range from 8 to 75 years old.
Emotional
Issues "When
I met Rachel for the first time, I noticed the profound sadness
and the distress it was for her at this young age," Nielson
says. "Rachel told me just how much it affected her by
the look on her face." When
asked about her sweating, Rachel would become very annoyed. "Every time
I'd start to sweat, I'd get so mad. I'd feel like screaming
my head off," Rachel says. Many people are misdiagnosed.
Dermatologists recommend botox injections into the hands or
Drysol as a treatment. Some patients are told to simply deal
with the problem. Patients, especially young patients, are told
it is related to puberty. Other patients are told the sweating
is a panic attack and are prescribed anti-depressants. Patients suffering from
hyperhidrosis - from teens wanting to date but won't due to
sweaty hands to adults choosing a career - face a lifetime of
emotional problems, Nielson explains. "I can recount stories
of patients who have been excluded by classmates," Nielson
says, while detailing the emotional pain that hyperhidrosis
can cause. Hyperhidrosis affected the lives of 17-year-old
Katie Stevens, a senior at MacArthur High School, and 19-year-old
Megan Kolenda, a freshman at San Antonio College. "I felt separated
from the others," Stevens says. "I was really embarrassed
because my hands were so sweaty and I didn't know what was
wrong with me." Kolenda
agreed with Stevens:
"I felt different, and I was always shy. I worried about
meeting people or getting my paper wet in school." Although
they have never met, Kolenda and Stevens used the same techniques
to cover up their sweating. They always wore denim pants because
it absorbs the sweat. They were able to wipe their hands on
their jeans. Both carried a sweater even in the hottest months,
and wore only white or dark colors so that the sweat would
not show under their arms. "I saw the reaction
on people's face when I would shake their hands and they would
have to wipe their hands off," Stevens says. Kolenda says
she used stories to cover her sweating by saying she had "just
washed her hands." "Dr. Nielson was
so nice and comforting," Stevens says. "He shook
my hand then took my hand and rubbed it. He was not cringing
or anything."
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Kolenda
had the surgery in August 2000 and Stevens had the surgery
in February 2001. Both report success. As for Rachel,
who two days before the surgery came home crying again,
surgery was a success also.
Nielson
had a difficult time describing his own happiness for
Rachel. "It was most gratifying to see her in post-op
with her mom and dad, fully awake and having the biggest
smile because her hands were dry and warm," Nielson
says. "She was ecstatic at the change. I can't even
describe the happiness on her face."
Sarah
and Larry Walther are relieved that Rachel does not have
to endure a lifetime of emotional pain. "I feel like
God was with us from the beginning," Sarah points
out. "It is a euphoric feeling now that it is done.
There is no other way to describe it." |
If you think
you suffer from hyperhidrosis, call (877) VERYDRY |